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Our  13 year old son was diagnosed with Batten Disease in December  2005.
This is a neurological degenerative disease that leads to an all too early death
of its suffers. The children with this disease will only survive into their late
teens or early twenties.
We are trying to educate the public to this cruel disease, and hope for added
help and support to try to find a cure before it's too late.
There is only 715 cases in the United States, that is how RARE this disease is.
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Nicholas is happy that Will Smith is
making another Men In Black movie.