This being my first entry please bear with me, as I may tend to ramble on a bit. As you know from reading the home page, my son Nicholas was diaqnosed in December with Batten Disease. It was a difficult pill to swallow after realizing that there was nothing that I can do to help my only child. I have always been able to take away his boo-boos.
This just makes it even the most capable mother feel helpless and completely useless. There is nothing like sitting by and know that you can't stop a seizure.
Hearing this news your priorities in life take a 180 and you set your sights on completely different goals. I have promised to myself and my family that I will make every moment with my son count. That I will not procrastinate. And that there is no such thing as spoilling such a precious being.
I went to the grocery store yesterday, and as I was walking the isles, I heard this crying child. It took all of my strength to keep from going over and comforting him. His crys sent anxiety coursing through my body. I almost started to cry right there in the middle of the pastas.
Today my loving little boy gave me a big hug as I was leaving after lunch to go back to work. He asked me when I would be home, because he missed me. It's those little moments that I will alwasys remeber. I used to say one of my mottos was "It's the little things in life". I now realize what that truely means. I will remeber all those little things that Nicholas has said and done that made being his mom the most important job I ever had.
I will be posting often, so please be sure to check back often.
Thank you for your support!
