Learn more about Batten Disease

BDSRA is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action. Founded in 1987, by parents seeking to build a network for those diagnosed with Batten disease, BDSRA is now the largest support and research organization dedicated to Batten disease in North America. BDSRA believes that to effectively unravel the mysteries of Batten disease, the worlds of medical science, research, and families must work together toward a common goal: discover treatments and cures while assuring a better quality of life for those living with the disease.

The Department of Biochemistry & Biophysics (B&B) strives to understand the molecular mechanisms of important biological processes, thereby providing insight into how disruption of these mechanisms causes disease.

THE CHARLOTTE AND GWENYTH GRAY FOUNDATION EXISTS TO IMPROVE AND SAVE THE LIVES OF ALL CHILDREN IMPACTED BY BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISORDERS.

Founded by two parents committed to finding a cure for Batten disease to save the lives of their daughters, the Foundation recognizes firsthand the day-to-day challenges of living with a rare disease. In addition to funding research, the Foundation also provides financial support to families for education, patient therapies and equipment critical to their well-being and rehabilitation.

Beyond Batten Disease Foundation is spearheading a unique, cohesive strategy that incorporates independent scientific resources and collaborations with related funding organizations to drive research into Batten Disease. See how Beyond Batten Disease Foundation is working with academia, the pharmaceutical industry, and government agencies to cross the “Valley of Death” between initial scientific discoveries and meaningful progress toward treatments and cures.